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Personal Stories

Life as a GUCH goes on

Nearly 30 years post Fontan surgery and still life as a GUCH goes on!! I was born in 1973 and diagnosed with Tricuspid Atresia with ASD, VSD and right...

A chd battle – Tanesha’s world

Tanesha was born on the 31st may 2009 at 5.55am weighing 9lb 10oz 14 days late after a normal but painful pregnancy (morning sickness throughout, spd ,sciatica) 2 scans...

Sofia’s Story

Sofia Shah was just three years old when she became critically ill and in need of a new heart. Her mother Leah tells her story.

Rhys’s Story

fter I was born mummy took me up to the ward and in the night Daddy was admitted to my hospital!!! SCARY!! But we were both well enough to...

My Story – by Lesley Meek

My Name is Lesley I was born in December 1966 to My Mother and Father and I am their only child. I was born in the local Hospital on...

Jade’s story

It all started on the 25th May 1995, Jade was 9 days late but she was here and she was beautiful. When the doctor came round when she was...

Finlay’s Story

This is Finlee’s story as told by his Grandparents Finlee Thomas Grimshaw (DOB : 18.09.2009) – aged 2 years and, what an eventful two years it has been! This is our...

Isla’s Story

When my husband and I went to my anomaly scan at 21 weeks I was so excited to see how much our baby had grown since our earlier scan...

Imogen’s Story

This is little Imogen's story, told by her mum, Gemma Penney.