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Amelia Matters

Amelia’s journey – Fontan

It’s that time again, that very unsure, heartbreaking time. Our letter came to say Amelia was due in for her fontan. After receiving our initial date we were cancelled twice in one week. At first we were angry as we have so much to put into place with four other […]

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Jade Licence’s story

It all started on the 25th May 1995, Jade was 9 days late but she was here and she was beautiful. When the doctor came round when she was 5 days old I had no concerns, he checked her all over and then he listened to her heart. This is the start of our journey……

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Finlay’s Story

Finlay

This is Finlee’s story as told by his Grandparents

Finlee Thomas Grimshaw (DOB : 18.09.2009) – aged 2 years and, what an eventful two years it has been!

This is our story of Finlee living with Pulmonary Atresia with Ventricular Septal Defect (VSD).

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Isla’s Story

When my husband and I went to my anomaly scan at 21 weeks I was so excited to see how much our baby had grown since our earlier scan and this being my 2nd baby, I knew how much baby’s grew and how amazing this scan was!

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